So, you might remember reading a little while ago about my supposition about having a yeast allergy. And if I would have written earlier I would have said, "woops, I was wrong." I went to an allergist and they told me that no, I was not allergic to yeast. They thought I had Gerd--basically, acid reflux. They suggested that I take Prevacid, and so I did, even though the diagnosis didn't seem to completely jive and the medicine packaging said only to take it if you were having heart burn three or more times a week, which I wasn't, at the time. I wouldn't even have called it heartburn, just a feeling like I had a hard time breathing when I ate bread, and a few times when I ate rotisserie chicken. Not other chicken, just rotisserie chicken. And I eat rotisserie chicken so seldom because it's expensive, that I'd forgotten about it until I was at the allergist. Anyway, all very curious, I know. I did have some other symptoms, too, but I'll spare you those for now.
I had had some heartburn, quite a bit, actually, last summer, when I had bought some ultra lactase instead of the regular kind for my lactose intolerance. And the heartburn only came after taking a prescription that I've been taking every day for the past six years. (Well, minus a few months to be totally honest, when I tried going off of it but discovered that wasn't a good idea.) In any case, I thought that was just a bad chemical reaction or something. When I went back to regular lactase, or only took half an ultra, the heartburn went away.
Anyway, so I took the Prevacid, and within a few days of taking it, it seemed that wasn't such a smart decision. I got sicker than I had been before, with light headedness and stronger shortness of breath, and even more tired, if you can believe that. So I stopped and called the GI reference my doctor had given me and started to keep a food journal.
Well, not along after that, I did start getting heartburn again, and not related to any lactase-taking. And I started getting some other symptoms in the lower digestive tract, or they got significantly worse I should say, the details of which I'll spare you. I also had a recurrent sore throat, and headaches and stuff, too. Really, it was quite messy. So I became quite glad that I had made that GI appointment.
However, it was still a couple weeks to wait, and then, even at the appointment, the GI doctor wasn't able to give a definitive diagnosis, though he thought it sounded like Gerd, too. He also thought I might have another cyst, and suggested I see my gynecologist. But in the meantime, he scheduled an endoscopy for me, because it was quite clear there were digestive problems regardless of any cyst presence.
(Fortunately, I was able to see my gynecologist two days after my appointment with the GI, and she confirmed that I do not have another cyst. She also did not think it likely that my digestive symptoms were related to my endometriosis. So, at least that was cleared up.)
But the wait for an answer was still on, and the appointment for the endoscopy was first scheduled for the 29th of June, which was frightfully long to wait. Fortunately, they told me I could call on Monday to see if there were any cancellations. And when I called, there was one--for the 15th, then a little over a week later. But now, today!
Drumroll, are you ready? It's kind of yucky, so you can go away now if you want. The diagnosis based on the EGD is that I have two small ulcers in my stomach and eosinophilic esophagitis. Lovely, huh? They also took biopsies, so I suppose there might be more later, but let's hope this is all.
What are these things? you're asking. Or maybe not. Ulcers, well, you know what those are. They're kind of scary sounding to me, though. I have been doing quite a bit of internet searching to find out what might be wrong and to figure out how to eat and all that. And the thought of an ulcer had occurred to me, and I remember even searching with trepidation, hoping that would not be the case. Why? I don't know. I guess it's one of those horrible words you grow up hearing in books and TV and whatnot, so I'm preconditioned not to like the sound of it. But in reality, how is it really worse than something I hadn't heard of as a kid? Like eosinophilic esophagitis? That one should probably be a bit scarier. Well, I don't know which is scarier.
But this ee thing, what is that? I was in a bit of a semi-conscious state when the doctor told me after the procedure, so I did a little research, and it turns out it's an inflamed esophagus, an auto-immune disease, and caused by an unknown allergen. It's also related to Candida, or yeast allergy. So you see, I wasn't crazy! It's not exactly the same thing as a yeast allergy, so maybe, I'm hoping, I can eventually eat yeasted things again. But we'll see. It's also related to Gerd, so acid reflux is a symptom.
Which brings me to the point that, fortunately, the treatment for both ulcers and ee is about the same. Soft and mild foods for awhile, take Prilosec, related to Prevacid, so I'm really hoping I have a better reaction, and discontinue NSAIDs.
Yes, I can't take ibuprofen any more. That was probably worse than hearing I had those abominable ulcers. No more ibuprofen? How can I manage? Maybe some of you are die hard anti-pill people and you don't think that's a big deal. But you probably don't have endometriosis and arthritis (only diagnosed in my foot, not my hands, fortunately, though it does make exercise kind of painful). If you do, please share your secrets, because this is really killing me. For both of those diagnoses, both doctors' suggestion was Advil, as many other doctors have suggested for various other pains I've run across in my life. Doctors seem to like to tell you to take Advil. But now I have one telling me to stop, and for a very good reason. I don't want any more ulcers, and I want these to go away.
I'm not addicted to ibuprofen. I have actually gone weeks without taking it. And I even try to postpone taking it at times, even when I have pain, just to keep myself from overdoing it because I know it can cause stomach problems. But there are also periods of time when I have to take a good dose every day for a stretch. I've tried other painkillers. I had a very bad reaction to aspirin, and Aleve made me bloat something awful. Not that those matter. I can't take those any more either. I actually use topical analgesics, like sports cremes, pretty regularly, and they work okay. Not great, and nothing for headaches but they help a bit. But Tylenol, the recommended alternative, or acetaminophen, has just never worked as well for me. And so if it doesn't work as well, will I be tempted to take more than I should and then have some other bad reaction to that?
Well, I irritate myself with too much negativity, and indeed there are some very positive things. But I needed to express those concerns in order to know how to turn them around, rather than being forced to ignore the negatives. I don't think that's helpful either.
So, for positive things:
1. The blessing I received comes back to comfort me that I'll be able to handle the changes in my life.
2. My family is very supportive and have been praying for me.
3. Supportive roommates, and much thanks to them for being willing to help me out so much.
4. Supportive friends at Church--and much thanks to Karen, the RS president for so cheerfully picking me up even though she wasn't familiar with the area, and for Marissa who was willing to.
5. I have only been working part-time, so I've been able to come home and rest, as I've needed to.
And my supervisor at work has been supportive, even having some experience with Gerd--her husband, that is. And he actually doesn't take Prilosec, recommended by his first doctor, but instead found another doctor who's more homeopathic, like acupuncture. So that's actually a thought. I worry it might be kind of expensive, though, but maybe I'll try it.
6. And of course, the list goes on and on. Somehow things will work out, with God's abundant mercy.
1 comment:
Have you looked into ezekiel bread (yeast free) to get you through till you can do normal bread again. If you type in ezekiel bread there is a link to read up on it. my dad loves it, and when he was visiting he found it at safeway in the freezer section (you have to keep it in the freezer). He has kinda went on a health freak run and is eating all kinds of "wierd healthy stuff" However I thought of this when I read your last post too... I don't know the cost of it of course prices in Idaho vrs Virginia seem to be extremely different these days to.
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